PROMS/RDA

The outcome of medical interventions is not easy to measure and interpret because of differences between the subjective perception of patients and the judgment of health professionals commonly viewed as more objective; therefore, a different value is often
attributed to an outcome by patients and physicians. Personal preferences, values and cultural beliefs, as well as contextual-environmental and personal factors, such as gender, age, other health conditions, lifestyle, habits, upbringing, coping styles, education etc., play an important role in how patients are able to function, cope and master their daily life. 

At our department we care about the patients reported outcome (PRO) as a resource to improve communication between patients and health-care providers as well as a feedback loop in the departments quality management. Criteria for positive outcomes must be specified including thresholds above which the outcome of an intervention is attributed to be a success. Once defined, Patient-reported outcome (PRO/PROM) measures are essential sources of clinical information for patients and stakeholders in health care institutions. 

Since 2020 we have been using electronic Patient Reported Outcome Scores (ePRO) via Email/SMS over Research, Documentation and Analysis (RDA) Platform, for data gathering has to be adapted to modern and usual mediums.  ePRO can bridge areal distances between the patient and the hospital as well as keep contact in an actual pandemic isolation due to COVID-19 in a secure way. They give patients the opportunity to be filled out in a calm atmosphere or as for distraction during waiting time. 

Currently Members of this research cluster are working on projects including PROM from patients after malignant tumors of the extremities (Sarcomas), patients after total joint replacement and after spine surgery. 

Principal investigators

• Priv.-Doz. Dr. Gerhard Hobusch
  gerhard.hobusch@meduniwien.ac.at 
• Dr.scient.med. Carmen Trost, BA MA
  carmen.trost@meduniwien.ac.at
• Dr. Christoph Hofer
  christoph.hofer@meduniwien.ac.at
• Sandra Hacker, MSc
  sandra.hacker@meduniwien.ac.at

Important publications

• Complications, mobility, and quality of life in ankle sarcoma patients. Smolle MA, Leithner A, Kapper M, Demmer G, Trost C, Bergovec M, Windhager R, Hobusch GM. Bone Joint J. 2021 Mar;103-B(3):553-561. doi: 10.1302/0301-620X.103B3.BJJ-2020-1308.R1. PMID: 33641415
• Cross-cultural adaption, translation and validation of the Toronto extremity salvage score (TESS) for patients in German-speaking countries. Trost C, Hofer C, Stamm T, Windhager R, Hobusch GM. Wien Klin Wochenschr. 2021 Jun;133(11-12):536-542. doi: 10.1007/s00508-021-01865-4. Epub 2021 Apr 27. PMID: 33905027 Free PMC article.
• What sports activity levels are achieved in long-term survivors with modular endoprosthetic humerus reconstruction following primary bone sarcoma resection? Lang NW, Kasparek MF, Synak L, Waldstein W, Funovics PT, Windhager R, Hobusch GM. Wien Klin Wochenschr. 2021 Jan;133(1-2):14-20. doi: 10.1007/s00508-020-01779-7. Epub 2020 Dec 9. PMID: 33296025 Free PMC article.
• Sports activity after soft tissue sarcoma of the lower extremity. Hobusch GM, Cernakova M, Puchner SE, Kolb A, Panotopoulos J, Windhager R. Disabil Rehabil. 2020 Jan;42(1):14-19. doi: 10.1080/09638288.2018.1520929. Epub 2019 Jan 8. PMID: 30620226 
• Sports activity after soft tissue sarcoma of the lower extremity. Hobusch GM, Cernakova M, Puchner SE, Kolb A, Panotopoulos J, Windhager R. Disabil Rehabil. 2019 Jan 8:1-6. doi: 10.1080/09638288.2018.1520929. [Epub ahead of print]
• Specific knowledge and resilience affect short-term outcome in patients following primary total hip arthroplasty. Bumberger A, Borst K, Willegger M, Hobusch GM, Windhager R, Waldstein W, Domayer S. Arch Orthop Trauma Surg. 2022 Jun;142(6):1229-1237. doi: 10.1007/s00402-021-03967-0. Epub 2021 Jun 3. PMID: 34081194 Free PMC article.
• From individualised treatment goals to personalised rehabilitation in osteoarthritis: a longitudinal prospective mapping study using the WHO international classification for functioning, disability and health. Stefanac S, Oppenauer C, Zauner M, Durechova M, Dioso D, Aletaha D, Hobusch G, Windhager R, Stamm T. Ann Med. 2022 Dec;54(1):2816-2827. doi: 10.1080/07853890.2022.2131326. PMID: 36259346 Free PMC article. 
• Higher patient knowledge and resilience improve the functional outcome of primary total knee arthroplasty. Bumberger A, Borst K, Hobusch GM, Willegger M, Stelzeneder D, Windhager R, Domayer S, Waldstein W. Wien Klin Wochenschr. 2021 Jun;133(11-12):543-549. doi: 10.1007/s00508-021-01829-8. Epub 2021 Mar 19. PMID: 33740126.
• Predicting Total Knee Replacement from Symptomology and Radiographic Structural Change Using Artificial Neural Networks-Data from the Osteoarthritis Initiative (OAI). Heisinger S, Hitzl W, Hobusch GM, Windhager R, Cotofana S. J Clin Med. 2020 May 1;9(5):1298. doi: 10.3390/jcm9051298. PMID: 32369985 Free PMC article.